Patient Pathways: Cutting Through the Noise
What does “good” care really mean for someone with Alzheimer’s? How can patients and their loved ones navigate this complex journey with clarity and efficacy? Patients and providers will discuss a path forward, specifically highlighting how individuals get diagnosed earlier, move into treatment or clinical trials if appropriate and desired, and have as much time as possible for them and their care partners to plan appropriately. This high-level road map will provide a pathway for both patients and their care partners. Key question: What are the challenges faced after diagnosis and how do people benefit from a roadmap?
Anything Is Possible: The Race to Be the Last Alzheimer’s Patient
This panel will bring together caregivers being pressed from both sides: individuals who are caring for both young children and aging parents experiencing cognitive decline and managing the family financially. The more traditional term for this group is the Sandwich Generation, but as those caring for two generations at once attest, this intense period feels more like a panini: squeezed, under constant pressure, with little room to breathe. Caregivers with diverse lived experiences will talk honestly about what that pressure looks like day to day and discuss why protecting their own cognitive and emotional health is a necessity, not a luxury. Panelists will cover practical, evidence-based strategies for preserving their own brain health while responding to the needs of their extended family.
Better Information Quicker: The Growth of Digital Resources and Cognitive Assessments
Easy access to high-quality resources and cognitive assessments would be a gamechanger for anyone concerned about their or a loved one’s cognitive health. Remote digital cognitive assessments (remote DCAs) have the potential to do just that, with many advantages over traditional pen-and-paper versions, including reliability, access, cost-effectiveness, and the capability of tracking over multiple assessments. Similarly, the BrainGuide platform empowers people with free and accessible knowledge and resources. This panel will discuss what the use of digital resources and cognitive assessments could look like in the home setting. Key Question: How can new innovations make Alzheimer’s resources and assessments more accessible for everyone?
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