Stephanie Monroe

Director of Equity and Access, UsAgainstAlzheimer's; Executive Director, AfricanAmericansAgainstAlzheimer’s

Stephanie Monroe is Director of Equity and Access and Executive Director of AfricanAmericansAgainstAlzheimer’s (AAN), a network of UsAgainstAlzheimer’s, which is a national advocacy organization based in Washington, D.C. The AAN was founded in 2013 and is the first national network created specifically to respond to Alzheimer’s disease’s disparate impact on African Americans. By working nationally, locally, and through strategic partnerships, AfricanAmericansAgainstAlzheimer’s is raising awareness of the impact of Alzheimer’s health disparities on communities of color and women, the need for greater minority participation in clinical trials to find better treatments and hopefully a cure, and the importance of all communities, especially those most at risk to begin to focus on brain health and adopt risk reduction strategies that promote brain health and healthy aging.

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This Speaker's Sessions

Town Hall
Wednesday Oct. 12
-
3:30–4:15 PM
ET
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Beyond Contemplating the Challenge of Inclusion in Clinical Trials

Clinical trials have traditionally fallen short when it comes to including people who are truly representative of the Alzheimer’s population. Recently successful efforts, however, are dispelling myths about the inclusion challenge. For example, among the 389 participants in the Evaluating Minority Patients with Actemra (EMPACTA) study approximately 84% were from Black, Hispanic, Native American, and other historically underrepresented groups. Key Question: What strategies successfully recruit, enroll, and retain participants who represent all of Us, especially those disproportionately affected?

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